Her entire life is impacted by something people can barely see and some days she can put on a good show, and others she fails at pretending to be typical.
If you are a working parent to typical children, please try to understand what this is like before you complain about our kids or judge us. Imagine that your child’s after school program was shut down as of tomorrow and your school district won’t bus them anywhere else other than your home. Imagine you have one day to figure this out and no family to help you. What do you do? How do you feel?
That is what it feels like to be an autism working mom. Like a revolving door that just keeps swinging and you can’t keep up.
Most families spend the year counting down the days until summer vacation. Days where they can sleep in, go on family excursions, and endure that time of year that fosters togetherness and fun.
But most of us with kiddos on the spectrum do the opposite, we count down the days until summer is over because our lives are turned upside down and inside out.
Lately, I have been reflecting on how much time our family has spent at home over the past two years. It has become such a routine that we hadn’t noticed how much time actually went by when we avoided going out. Avoided placed where we would have to chase Ally or leave abruptly because of … Continue reading Our Home, the Bunker
There was a time when I told myself my daughter was just fussy.
My blog has become dedicated to advocating for children on the autism spectrum. In my experience, the biggest source of discrimination against my child has been at private daycare centers.
Some of my long term followers remember what the past year has been like. Between our final childcare expulsion, my daughter being left on a major highway by the bus company, and me leaving my previous job– it was extreme stress. Well, what I did not share was that the Americans with Disabilities Act (ADA) … Continue reading Superintendent’s Response to my preschooler left on highway
So one morning in May, she woke up and searched for her iPad. But instead, she got a note from Santa’s Elf that they had taken it away. (Yes, I blamed the elves for her missing tablet).
This is what it is like to use pharma interventions. As much as people want to act like it is some easy way out or cop out, it brings a whole other level of issues.
What stresses me out most is that I am organized, prepared, and am the type of person who has a backup plan for a backup plan.